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Showing posts from November, 2023

Bed bound

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it's hard being bedbound.Then when you get out its frightening being out. The safety of a prison can tempt us and make it even harder to learn to walk again. when the second rail was taken off my bed I felt anxious

My expectations might be too high

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We may think that my expectations are too high for our society. if I would say they are ideals. they are something we can aspire to. the gap between what we do and what we would like to do can be painful. but it's good if one can maintain the tension: can keep both ends connected

It's not just nursing homes wider society is very bad in many ways

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you may think that I am giving nusr pHing homes a hard time by criticizing what I experienced and what I saw but I would go even further and say that many of the things that happened there which are unkind cruel or wrong happen in the wilder society as well 40% of dementia is preventable with who is more likely to get it? it's the poor of course some people may be able to make wonderful meals very cheaply but enough everybody can do that and if you are short of money and anxious about the cost of living it doesn't make it easy to race away from sheets ready-made food

I love to go a wandering inside the nursing home

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I love to go awandering around a Nursing Home and as I go I love to sing to drown out people's growns I love to take my sleeping pills, 3 hours before the time is giving patients sedatives a sin or just a crime? I love to see Dementia, she likes to scream and yell. she. longs to go as in the air, she's either ill or well. It's lonely in a nursing home. there's nothing much to do. I think we'll go through the snow, to catch a dose of flu. I love to go a wandering, around a little town now it's just these corridors, it sometimes it gets me down

Suffering behind the closed door

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When I was bed bound and I had a catheter in my bladder I felt a lot of pain in my bladder and it was not being empty by the catheter it felt very uncomfortable. someone used become to my room in the middle of the night to empty the bag because it was not big enough to last for the whole night and when they came I sometimes said I am in pain are you sure that it's connected properly, I have just spent nearly a month a big hospital and I was afraid of that. I don't know whether it was deliberate but they said to me some night night if you keep complaining we will send you back to the hospital. I was so lonely and so afraid I believed them I thought I was in pain and I would have to go to A and E. so I thought I'd better not go to sleep. after few nights like this I was not able to sleep and I went from being able to sleep fo 18 months. Until I came home. other times they were refused to change the disposable pads that the bedbound people had to wear and I was so for them if